Scientists at the Henry Ford Hospital in Detroit and the Rush University Medical Center have highlighted potential barriers to the implementation of patient reported outcome measures for patients that suffer from severe forms of disability and injury.
These include the inability of patients to give consent, administrative difficulties with form completion and lack of standardisation across diseases. In an attempt to overcome these obstacles, the National Institute of Health (NIH) created the Patient Reported Outcomes Measurement Information System (PROMIS).
This study provides an analysis of the results that PROMIS has achieved so far and of the health policy promises and challenges of this programme.
“Additional validation testing must be performed before PROMIS measures can be fully adopted. This includes longitudinal treatment response testing as well as incorporation of measures or modifications to detect changes in the performance of active individuals and athletes. Moreover, given the role of the NIH in the development of PROMIS, the question remains whether and how the international community will incorporate PROMIS into clinical and research use.”
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