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Real world data: Transforming the future of European health?

A Science|Business Healthy Measures & Data Rules Online Conference


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Even before the emergence of COVID-19, the significance of real world data to European health policy and programmes was growing – notably in the domain of patient-reported outcomes and their integration into health system performance assessment frameworks, which inspired Science|Business to create its Healthy Measures initiative back in 2016. 

Arguably, the current pandemic is highlighting how valuable these data will be in future, not only to healthcare but also to research & development and innovation. The realities of societal lockdowns have ushered digital technologies and solutions into the mainstream of health services, from telemedicine and virtual diagnostics to mobile apps and patient monitoring – surely a ‘new normal’ that will continue into the recovery phase and beyond.  

Similarly, the unprecedented level of global R&D cooperation to fight the coronavirus is creating a vast data pool, shared across borders, to which a wide spectrum of artificial intelligence, high-performance computing and big data tools are being applied in pursuit of vaccines, treatments, containment and more. If used smartly, these resources will fuel years of scientific endeavour, both within Europe and internationally. And they may have a critical role to play in supporting industrial value chains and an economic recovery that delivers a greener, smarter future for all.

That said, there is much work still to be done to prepare for the era of real world data. According to OECD analysis, only two countries have the necessary infrastructure in place to manage real time health data flows – but the pandemic may catalyse a fundamental change in political mindsets and willingness to make this happen.

As such, a major opportunity landscape lies ahead for the European Commission and other R&D leaders. In this Science|Business webcast conference, we will explore the implications of real world, real time data for the anticipated European Health Data Space, a revitalised European Research Area, as well as other key digital policies such as the European approach to AI and data strategy.

Speakers
Speakers
Mariya Gabriel
Commissioner for Innovation, Research, Culture, Education & Youth, European Commission
Mark Pearson
Deputy-Director for Employment, Labour and Social Affairs, OECD
Andrzej Rys
Director for Health Systems, Medical Products and Innovation, DG SANTE, European Commission
Lara Bloom
President & CEO, Ehlers-Danlos Society
Tomislav Sokol
Member, European Parliament
Jan-Philipp Beck
Chief Executive Officer, EIT Health
Mirit Eldor
Executive Vice President, Strategy, Elsevier
Didier Jourdan
Chairholder, Global Health & Education, UNESCO
Janneke van der Kamp
Head, Region Europe, Novartis
Casper Klynge
Vice President, Government Affairs, Microsoft
Mateo Valero Cortés
Director, Barcelona Supercomputing Center
Monica Dietl
Advisor to the DG, Coordinator Action Plan Europe, DG R&I, French Ministry for Higher Education
Hans Juul Hedegaard
Head, Data Service Strategy, Danish Health Data Authority
Kaisa Immonen
Director of Policy, European Patients Forum
Jordi Serrano Pons
Founder & CEO, UniversalDoctor
Minna Hendolin
Senior Director, Health and Wellbeing, Business Finland
Theodoros Arvanitis
Chair, Digital Health Innovation & Director, Institute of Digital Healthcare, Warwick Manufacturing Group, University of Warwick
Ruben Díaz Naderi
Deputy CEO, International Affairs, Sant Joan de Déu Hospital, Barcelona
Elke Grooten
Head of Brussels Office, Novartis
Douglas Gregory
Senior Director, Government Affairs Strategy & Excellence, Bristol Myers Squibb
Xosé Fernandez
Chief Data Officer, Institut Curie
Arild Faxvaag
Professor, Health Informatics, Norwegian University of Science and Technology
Levi Marelus
Co-Founder, Friendlybuzz Company
Programme
Programme

10:00  - Welcome & introductions

Simon Pickard, Network Director, Science|Business

10:05 - Beyond COVID: Where next for European health?

  • Policy perspectives from Andrzej Rys, Director for Health Systems, Medical Products and Innovation, DG SANTE, European Commission
  • Patient perspectives from Lara Bloom, President & CEO, Ehlers-Danlos Society

Moderated by Simon Pickard, Network Director, Science|Business  

10:30 - Better prepared: A new era for health policy and partnerships?

‘Fire side’ chat with:

  • Didier Jourdan – Chairholder, Global Health & Education, UNESCO
  • Tomislav Sokol, Member, European Parliament

Moderated by Maryline Fiaschi, Managing Director, Science|Business  

11:00 - Paradigm shift: Real world data and smart, healthy futures

Panel discussion with:

  • Minna Hendolin, Senior Director, Health and Wellbeing, Ecosystems, Business Finland
  • Mark Pearson, Deputy-Director for Employment, Labour and Social Affairs, OECD
  • Janneke van der Kamp, Head, Region Europe, Novartis

11:45 - Concluding remarks & break

12:00 - Chatroom Sessions – Interactive, moderated discussions (*by registration only)

Fresh fields: Real world data and transforming the status quo in:

1/ Health registries & data infrastructure

  • Arild Faxvaag, Professor in Health Informatics, Norwegian University of Science and Technology (NTNU)
  • Hans Juul Hedegaard, Head, Data Service Strategy, Danish Health Data Authority

Moderated by Simon Pickard, Network Director, Science|Business

2/ Clinical practice

  • Theodoros Arvanitis, Chair, Digital Health Innovation & Director, Institute of Digital Healthcare, Warwick Manufacturing Group, University of Warwick
  • Jordi Serrano Pons, GP, Founder & CEO, UniversalDoctor

Moderated by Ruben Díaz Naderi, Deputy CEO, International Affairs, Sant Joan de Déu Hospital, Barcelona

3/ Outcomes measurement in post-COVID health systems

  • Monica Dietl, Advisor to the Director-General; Coordinator Action Plan Europe, DG R&I, French Ministry for Higher Education
  • Douglas Gregory, Senior Director, Government Affairs Strategy & Excellence, Bristol Myers Squibb

Moderated by Elke Grooten, Head of Brussels Office, Novartis

4/ E-health: A new model for mental and physical care

  • Lara Bloom, President & CEO, Ehlers-Danlos Society
  • Levi Marelus, Co-Founder, Friendlybuzz Company

Moderated by Lysiane Pons, Project Manager, Science|Business

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12:45 - Lunch break

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14:00 - Welcome 

Maryline Fiaschi, Managing Director, Science|Business

14:05Opening remarks – Patient data: A new driver for European science & technology?

Kaisa Immonen, Director of Policy, European Patients Forum

14:10 - Silver linings: Will COVID revitalise European research?

Mariya Gabriel, Commissioner for Innovation, Research, Culture, Education and Youth, European Commission

Moderated by Maryline Fiaschi, Managing Director, Science|Business

14:30 - Precious resources: What should Europe do with its COVID and health research data?

‘Fireside chat’ featuring:

  • Mirit Eldor, Executive Vice President Strategy, Elsevier
  • Xosé Fernandez, Chief Data Officer, Institut Curie

Moderated by Simon Pickard, Network Director, Science|Business

15:00 - Digital futures: Will AI and data transform post-crisis healthcare?

Panel discussion featuring:

  • Jan-Philipp Beck, Chief Executive Officer, EIT Health
  • Mateo Valero Cortes, Director, Barcelona Supercomputing Center
  • Casper Klynge, Vice President Government Affairs, Microsoft

15:45 - Concluding remarks & Conference close

Speaker bios
Programme

Information
Contact

On June 30, if you wish to join a breakout session but haven't registered, please contact Andrea Stavrou (andrea.stavrou@sciencebusiness.net)

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