Partnership is ready to go with a seven-year budget of €380M to improve rare disease prevention, diagnosis and treatment
A new Horizon Europe rare disease partnership will launch its first calls in December, as it embarks on a seven-year mission to consolidate research and improve treatment.
The rationale for a joint European effort is that there are 7,000 different rare diseases, each with very few patients in every country. However, in total 30 million people in Europe are affected by a rare disease, for most of which there are currently no therapies.
“For the majority of rare diseases in one country you never have a critical mass that is needed to do the research on a specific disease. That's why strong collaboration is very much needed,” says Daria Julkowska, coordinator of the European Rare Diseases Research Alliance (ERDERA).<…
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